Both of Mark Vearing’s children, Jax and Zoe, have cystic fibrosis, and the family will be raising money through the happy hour raffles at the Robe Hotel every Friday night in June.
Cystic Fibrosis affects the lungs and digestive system because of a malfunction in the exocrine system, in charge of producing saliva, sweat, tears and mucus, and there is no cure for the disease.
People affected develop unusual amounts of excessively thick and sticky mucus within the lungs, airways and the digestive system, impairing the digestive functions of the pancreas and traps bacteria in the lungs. This is followed by recurrent infections, leading to irreversible damage, with lung failure being the major cause of death for someone with CF.
From birth, a person with CF undergoes constant medical treatments and physiotherapy.
“It’s a very complicated thing but a couple of people in Robe have it so we’re just raising a bit of awareness while trying to find a cure for it,” Mark told the Leader.
Mark explained that there is treatment for the disease, although it is really expensive as some of the treatments can be up to $300,000 a year per person.
The fundraiser at the Robe Hotel is going well for Mark and his family.
“Any profits from that will go towards it, we’ve got some donation tins and I’m getting raffles together from a lot of local businesses that will be up and running by the end of the week.”
Mark’s target is to reach $1700 through the Friday draws and other forms of donating. Mark is not new to the fundraising game, as he has fundraised in the past with Jill and John Davidson at the Easter Classic, raising money through a morning barbecue.
Mark mentioned why he chose this charity specifically to raise money through.
“This charity (Cure 4 Cystic Fibrosis) is South Australian based so the money we raise will go towards these kids and they will benefit from it.”
With two families that have children going to the same primary school as each other who are living with CF, Mark explained what has motivated him the most to get involved as much as he can.
“Robe Primary school is a very small school so these kids can’t be in contact with each other obviously with Jax and Zoe it’s inevitable because they are brother and sister. But there is another family in Robe who have it so they can spread bacteria and germs between each other.
“We want to raise awarness in the town so people understand what is happening.”
Publican Luke Hann mentioned his thoughts on Mark’s idea to fundraise and how pleased he is about it.
“We’re really happy to support a great cause, that unfortunately affects some local families in Robe.”